4 months and still going strong!

Well, it’s july which means that its been 4 months since I’ve had my stem cell transplant. Its crazy to think that just 4 months ago my life consisted of nurses, blood getting drawn at the MOST inconvieniant times, meds, doctors, the whole “cancer world.” Now, here I am,  working a full time job, feeling great! I have the energy to climb up stairs, which is a huge accomplishment due to the complete lack of muscle I had once released from the hospital. I can actually stand long enough to take showers.

My three month scan was beautifully clean, which is probably one of the greatest things I’ve heard all year. Since the whole adventure began I’ve not made it more than three months being “healthy.” So this, was a HUGE accomplishment.

I’m so incredibly blessed to be feeling as healthy as I do. When I was first released I remembe thinking “Wow, recovering from this is going to take FOREVER”, but it hasn’t. I’m 4 months out, barely taking any medicines, healthy enough to go to work and spend time with my friends. I’m about to start going to school full time. I might be pushing myself a little harder than doctors would advise, but if I can do it, what’s the problem?


Q
Hi! I found your blog and i just wanted to tell you that i have the same cancer as you! I mean i have stage 3 but still! I just wanted to let you know! Maybe we could talk about our cancers. I haven't really met or talked to anyone with the same cancer as me so maybe we have some similar things going on!
A

God bless you. I’m so sorry you’re having to go through all of that mess.

I’d love to talk with you. I got this and started writing (even though I wasn’t very consistent) just in case people who had Hodgkin’s were looking for some answers. I’ve been diagnosed with it twice and recieve a stem cell transplant in March. I’ve seen it all though; Chemo, radiation, surgery, shots, steriods, hospitals, I’ve dealt with it all. I’d love to be able to talk to you about it.

How far along are you with your treatments? What all treatments are you getting?

I’ll be praying for you! :)

“I can do all things through Christ, who strengthens me” Phil. 4:13


I’m baaaaack

Alright, I’m back down here in the hospital for the highly anticipated Stem Cell Transplant. Its scheduled to happen on Thursday!! :) 

I’m going through BEAM chemo right now and I’m on my 3rd day out of six so halfway done with the hard part! Woot Woot. So far it’s been a little rough as far as upset stomach goes and the medicines they give me really make me sick because as soon as they pump it in my port, I feel it. So I’m a little scared to take anymore medicines. I’m gonna try to fight through it just for now. 

Also last night my oxygen was a little lower than normal so they thought they’d have to put an oxygen mask on me, but fortunately it wen’t up so I didn’t have to wear one.  

That’s pretty much all the exciting stuff that’s been happening within the past 3 days, oh other than I’m giving up sweet tea and its SO hard. 


Home Sweet Home

I’ve never actually taken in the meaning of the common saying, but being home is very sweet and has been extremely exhausting. if what I’m about to say sounds like I’m complaining, please do not be mistaken, I would never. I’ve been on the go ever since I’ve gotten home and I absolutely love it. I cannot enough of my house, but I’m having such a great time pouring all of my energy into the doing things I love, and while I do love tumblr, it’s not on my top faves list. I’ve always been bad with updating anyway. forgive me? 

I’ve had constant smiles since I’ve gotten home. I’ve been baking, or attempting to bake. I’ve been spending every second I can catching up with my friends. I’m house shopping which is making me EVEN more excited about getting back to school and just enjoying my month of freedom, in which I have no doctor’s appointments or anything! :) 

So if I don’t update as often, it’s because I actually have some sort of a life and am out doing something! I finally have an excuse for not updating ;)

Enjoy your lives and don’t take to much for granted!!! 


Q
I just wanted to let you know that you are an inspiration!! I was literally just looking for stuff to buy for my Gamma Phi Little and your blog came up. You are an inspiration.
A

Awe, thank you so much. :) I’m glad I inspired you, even if it wasn’t in the way you needed. I remember shopping for my little, I started 2 weeks after I got my big I was so excited. Have fun and if you’re crafty there are TONS of things you can make! :) 



So that’s what spilling your soul is like…

Today has been one of those days. The emotional kind. I got woken up at 9am, which really isn’t early buuuut I got woken up to be given a shot, so I wasn’t a happy camper. Then while the nurse is giving me the shot she tells me that my white blood count is still below .1. I know I haven’t updated in a while, but it’s been this low for like the past 7 days and I’ve been getting these neupogen shots EVERYDAY. So basically I woke up in a awful mood and it didn’t get much better because I have had the WORST stomach cramps all day due to Mother Nature and her terrible timing. All of the PMS symptoms are adding to me being frustrated an annoyed and tired so I’ve been a HUGE ball of fun today, if you can’t tell by the lovely tone of this paragraph. 

Fortunately my day did a complete turn around in the afternoon. My friend and sorority sister A. text me and told me her psychichad said that “she had a friend who was sick but if they kept their faith in God, he would heal them,” (pyschic talking about God is ify, but since it’s good news, I’m going with it.)

Read this text message and tears were immediately falling from my eyes. It’s so incredibly how steadfast God’s love for us is. On the days that I need encouragement and feel the most alone he always finds a way to let me know that he is here for me. With this and the lady at the coffee shop, there is honestly no way I could not keep my faith in him. He is continuously showing and “proving” that he is there for me. Which is the craziest of circumstances because if anyone should be proving anything I should be proving my loyalty and devotion to him. I see people who faith is so entrusted in the Lord and it inspires me so much to be a better believer.  

Its moments like that, the ones that touch you so deeply, you cry instantly, those are the moments that I live for. This battle with Lymphoma has truly been and probably will be the hardest thing I’ve ever gone through and it has changed me in so many ways I couldn’t even begin to describe all of them. 

Frankly, Cancer is a bitch. It turns the your body against you and strives to take away everything that is important to you and yes, everyday is a constant battle, emotionally and physically. There have been days where I’ve wanted to do nothing but sleep because cancer had “taken” my life away from me. There have been countless times where I’ve cried for the silliest of reasons. Whether it was my favorite food tasting gross because my chemo altered my taste buds, or the times where I’d be starving yet I couldn’t eat anything because there were sores on my tongue, and even mashed potatoes were to rough to eat. The times where I’ve taken showers just so I can cry. Cancer has pointed out all the things I took for granted. Going to school. Taking tests. Seeing my friends everyday. Going to the movies. Living carefree of germs. Brushing my hair. Washing my hair. Smelling the scent of shampoo when the wind blows your hair. Eating your favorite foods and taking in just HOW great they taste. Those are just a few things I’ve taken for granted that I will never take for granted again in my life. When I get back to school, I will never complain about how I have SO much homework to do, or how I can’t go out on the weekends because I have to study. 

Even though Cancer has treated me so badly, I wouldn’t change it. Yes, all of it sucks, but it has given me so many thanks to be thankful for. I now know who my real friends are. The ones who will drive 3 hours to see you when you’re in the hospital even if it just for a few hours and all you do is sit there and talk. I know now just how important my education is to me. Before all of this if you told me how hard I would fight to stay in school, I’d probably think you’re crazy. I know that even though at the time, and even know I’d say that losing my hair was the hardest part of it all, hair is jut hair. It grows back, and it doesn’t show how beautiful you are. It simply acts as an accent to your inner beauty. In which I’ve become more comfortable with presenting. Before this, I had friendships and relationships that had been tested but I never felt like I opened up. I would just say “I’m fine”, smile, and immediately ask them how they were, but now, I open up to people. I don’t sugar coat things as often as I had which has made me feel like a bigger bitch but I think this experience has just made me grow up and realize the difference between whats important, and what isn’t. I now know whether or not to make a huge deal about something or if I just let it go because it isn’t worth the arguement. I’ve changed so much throughout this experience so how the heck am I supposed to answer the question “How has cancer impacted your life and your goals,” for all the scholarships? I’d sound like a complete nut if I put all the ways it’s effected me onto paper. They’d seriously commit me to an institution. No lie. 

WOW, if you just read all of that and it makes sense, I’m so sorry. I got on a rant, and just kept going and well I’m going to re-read it and  change little mistakes of course but I usually like to just keep my feelings pure; how I felt at that exact moment. 

And it feels so great to get all that off my chest, even though right now, I feel so vulnerable posting it on the internet, but I’m going to do it. I got this blog to describe my journey and well lets be honest I’ve been sucking at that. I look at tumblr everyday I just never write entries which is SO weird. I read my dashboard, go look at the directory, blah… blah… blah… but I never actually really remember to write in it. I’d say I promise I will, but I’ll forget. I’m terrible at remembering things like that which is so weird because when I’m in it to win it, like at school I’m organized to the second. I just need a planner I guess to organize my life and write a to-do list, even though it would consist of boring time filling tasks. Ok, well I’m rambling now, and I should sleep because I desperately want my counts to go up. goodnight.

K.



Bottomed out.

So even though I sit in the hospital all  day and do absolutely nothing, I still forget to update this thing. I’ve finished my 5 days of chemo and am on day 4 of Neupogen shots. The chemo I had was rougher than any of the other ones. I didn’t want to eat because everything tasted weird, even water, but now that I’m off chemo, those symptoms are gone like the wind. The neupogen shots have been ok so far, no bone pain/muscle aches yet so I feel like a winner. My white blood count has bottomed out so I literally have no white blood cells to fight off any infection. This is all to be expected though, hence the shots I’m getting. Dr. F (not my normal doctor, but apparently theres a huge team of them that look everything over and so they all know whats going on), thinks that hopefully on Tuesday we’ll be able to start extracting my cells which would just be absolutely fantastic! I’m technically not supposed to get them taken until Valentine’s Day, so if it happens Tuesday that will be a week earlier which means I’ll get to go home sooner! :) 

The weather has been crazy out here in the Midwest so my friends didn’t get drive down and see me this weekend which was a pretty big bummer because I was looking forward to seeing them. Stupid snow. 

Dad is down for the weekend so I’m going to watch movies with him, and I will do my very best to keep this updated, I mean I really have nothing else to do.